Stardust Global Ventures

This afternoon I was made aware of a situation that brought to light the complexities of social media with regard to real life situations, and the power we all have to make a difference.

Nearly 18 years ago I gave birth to my youngest child. When David was born we immediately discovered he had something called Pierre Robin Sequence, which essentially meant he had a cleft palate as well as a small mouth and jaw. That created a year and a half of doctor appointments and surgeries which was just the beginning.

When David was 1 1/2 he had his first diagnosed fracture to the tibia in his right leg. He got the cast off a few weeks later only to fracture the tibia in his left leg. When that cast came off he broke the first metatarsal in his foot which led us to a specialist who diagnosed him with a disorder called Ostegenesis Imperfecta. OI is basically brittle bones. Our journey had taken yet another twisted path.

So why is this important and what has it to do with social media? I was reading my twitter stream and one of my pals, @GeorgeDearing posted a link to Chris Pirillo’s site. It was a specific post about a kid named Robert who has Cystic Fibrosis. You can read more about it here.

When I poked around in that thread I realized there was more information and a link to the fundable site for donations to Robert for his future transplant.

Because of my passion for helping those with needs like this, I wanted to make sure I gave this some space on Stardust. There are few things I find more important than helping kids. Please have a look and if you feel compelled, make a donation either to Chris Pirillo or to the fundable site for Robert. We can ALL make a difference. Really!

As an aside, on my facebook profile I started a cause for Osteogenesis Imperfecta and you all are welcome and encouraged to join.

My son David taken just after his first surgery to repair his cleft palate at 9 months of age.

David just before his first trial treatment to help strengthen his bones due to spinal fractures.

David today!

Technorati Tags: David Worley, Chris Pirillo, Osteogenesis Imperfecta Foundation, Fundable